Category: Maeve Boothby O'Neill
-
More Debate About Treatment of Severe ME/CFS
Last month, Jonathan Edwards, an emeritus professor of medicine at University College London and an advocate for patients with ME/CFS, published a statement on a pre-print server about managing the nutritional needs of patients with severe disease. (I wrote about it here.) A few days ago, a group of parents and carers released an open…
-
Professor Edwards’ Take on Nutrition and Severe ME Cases
Jonathan Edwards, a professor emeritus of medicine at University College London, has released a document involving the provision of care for people with severe ME, an issue at the core of some recent high-profile cases in England. The document, which Professor Edwards posted on a pre-print server, is called “Management of Nutritional Failure in People…
-
Sarah Boothby Discusses Second Pre-Inquest Hearing into Death of Daughter Maeve from ME Complications
Maeve Boothby O’Neill died of complications from ME in Exeter, England, in October, 2021, after three admissions to the local hospital. (I wrote about Maeve’s life and death last year for Codastory.com.) Since then, the family has been waiting for an inquest to be held into the circumstances of her death and the actions of…