Author: David Tuller

If you appreciate this piece and/or my work in general, here’s a link to my current UC Berkeley crowdfunding effort: https://crowdfund.berkeley.edu/project/20159 As I reported yesterday (oops!–it was Thursday, not yesterday–this is a correction made a few minutes after posting!), the Oxford Health NHS Foundation Trust, which oversees NHS services in the area, recently published a pamphlet…

On the Mahana Therapeutics website, Robert Paull, the CEO and co-founder, explains in a statement that his personal interest in developing treatments for GI problems arose out of the longtime suffering of a family member. His account is heartfelt and compelling. Unfortunately, Mr Paull and his company have placed their bets on the wrong horse.…

If you appreciate this piece and/or my work in general, here’s a link to my current UC Berkeley crowdfunding effort: https://crowdfund.berkeley.edu/project/20159 Since the coronavirus epidemic hit, people with ME have been concerned about the possibility of a secondary wave of post-COVID-19 cases of prolonged disease–especially given emerging evidence of neurological complications of the illness. Key investigators…

As the world continues to wrestle with the coronavirus epidemic, President Trump is calling on us here in the US to get back to work. So I decided to start seeking answers again from Mahana Therapeutics, which announced in January that it had licensed a web-based cognitive behavior therapy program for irritable bowel syndrome from…

At this time two years ago, I was in Australia on a six-week work trip. As part of my tour, I visited Perth so I could meet and spent a little time with Alem Matthees. I also got to spend time with his lovely family–his mom Helen, his step-dad Jim, and his sister Mya, who…

This is another non-coronavirus post–my second in two days. Before we were interrupted, I had been looking more into so-called “medically unexplained symptoms,” or MUS. A recently published study with data on the length of time needed to obtain a diagnosis of systemic lupus erythematosus, commonly known as lupus, has highlighted some of the core problems…

In the days before coronavirus was everything, I was writing about a major study of cognitive behavior therapy for irritable bowel syndrome. The study tested telephone-delivered cognitive behavior therapy, web-based CBT against treatment-as-usual for IBS symptom severity and other more generic domains. Although the pre-COVID era feels like ancient history already, my last post on…

My sweet friend Anil van der Zee lives in Amsterdam–more accurately, he lives on his bed in an apartment somewhere in Amsterdam. Like too many, he’s had a lot of experience at self-isolating. Below is part of the blog he posted a few days ago. The Distant Corona Connection Adjusting.We are in a crisis! A…

It’s a frightening time for everyone. As we know, people with underlying medical conditions are at greater risk from coronavirus. At the same time, many of these individuals long ago adopted some of the strategies everyone is now being asked to adopt. Certainly people with ME–or with what is referred to as CFS, CFS/ME, or…

Like many or most, I don’t know what I’m supposed to be doing right now. I am “sheltering at home” in San Francisco, following the news, making way too many cups of coffee, chatting much more on the phone than usual, checking in with my 90-year-old mom in Manhattan, watching movies I’m not interested in…

I was supposed to be in Bristol, England, last week at the CFS/ME Research Collaborative conference. The conference went on as scheduled, but I decided the weekend before that the situation was getting too dicey to leave home. I didn’t want to get swept up in lockdowns and international travel blockades and not be able…