Trial By Error, by David Tuller
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Interview with Dr Peter Rowe of Johns Hopkins about “Living with Orthostatic Intolerance”
Dr Peter Rowe is a professor of pediatrics at the Johns Hopkins School of Medicine and director of the Chronic Fatigue Clinic at the Johns Hopkins Children’s Center. As an expert on orthostatic intolerance, a common component of ME/CFS, Long Covid and related illnesses, he has recently authored “Living Well with Orthostatic Intolerance: A Guide…
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Norwegian Tabloid Covers Stupid Gulf War Illness/PEM Study; My Letter to Journal Editor on Bogus Claims
Earlier this month, I wrote a post about a new study asserting that “exercise does not cause post-exertional malaise in Veterans with Gulf War Illness.” As I explained, the research, led by experts from the University of Wisconsin and published by the journal Brain, Behavior, and Immunity, made no sense. Although it purported to investigate…
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UK Health Care Professionals Appeal to Health Secretary for Quick Action on Poor ME Care
Tuesday, September 17th, was World Patient Safety Day. (I didn’t know that either.) In the UK, more than 200 physicians, nurses and other health care providers and professionals marked the occasion by issuing an appeal—in the form of a letter to Wes Streeting, Secretary of State for Health and Social Care since–about the dire state…
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Bogus Claims in Study of Exercise and PEM in Gulf War Illness
A recent study investigated a question no one seems to have been asking. That can be a good thing—if it’s a question that’s worth investigating. But that’s not the case here. The study, published in the journal Brain, Behavior, and Immunity and led by researchers at the University of Wisconsin, was called “Exercise does not…
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Little Sign of CBT/GET Ideologues in News Coverage of Inquest and BBC Breakfast Segment on ME and Long Covid
One interesting aspect of the recent inquest into the death of Maeve Boothby O’Neill was the widespread news coverage. Maeve died in October, 2021, in Exeter, UK, of malnutrition arising from her severe ME, as the coroner ruled a few weeks ago. During the two weeks of testimony, from July 22nd through August 2nd, print…
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Post-Inquest Comments from Sarah Boothby, Maeve’s Mum
During the inquest into the death of Maeve Boothby O’Neill, both of her parents refrained from making public statements about the proceedings. The inquest was held in Exeter, in southwest England, UK, from July 22nd till August 2nd. After the coroner, Deborah Archer, issued her findings–that Maeve died of malnutrition as a consequence of her…
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A Deeper Dive into the Inquest’s “Findings and Conclusions”
Last Friday, August 9th, assistant coroner Deborah Archer read in court her “findings and conclusions” in the inquest into the death of Maeve Boothby O’Neill, the 27-year-old woman from Exeter, UK. Three hospitalizations in the months before Maeve died in October, 2021, failed to resolve her failing nutritional status. Over the course of two weeks…
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Valerie Eliot Smith on the Inquest Findings
On Friday, Deborah Archer, the coroner in the inquest into the death of Maeve Boothby O’Neill, issued her factual findings. The bottom line: Maeve died from “malnutrition caused by severe ME.” Archer found that the Royal Devon and Exeter hospital and others involved in her care acted properly. She rejected the request of Maeve’s parents…
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Whitney Dafoe and Naomi Whittington Reflect on Severe ME and the Inquest into the Death of Maeve Boothby O’Neill
On Friday, August 9th (tomorrow), Deborah Archer, the coroner who presided over the inquest into the death of Maeve Boothby O’Neill, will issue her findings of fact. Following that, she has tentatively scheduled another day of testimony on September 27th. The testimony during the two-week inquest, held in Exeter, England, UK, revealed starkly that the…
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Sean O’Neill’s Inquest Statement
Last Thursday, both of Maeve Boothby O’Neill’s parents testified at the inquest into her 2021 death from ME-related complications. (I earlier posted Sarah Boothby’s statement as read into the record.) It was the penultimate day of two weeks of court sessions in Exeter, in the south-east of England, UK. The coroner, Deborah Archer, is scheduled…
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Sarah Boothby’s Statement to the Inquest
The two weeks of public hearings in the inquest into the death of Maeve Boothby O’Neill ended on Friday. (The coroner, Deborah Archer, plans to issue her findings on the facts this coming Friday.) Last Thursday, both of Maeve’s parents testified. Her mom, Sarah Boothby, took the stand first. She read most of the statement…
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Dr Weir’s Letters on Treatment of Maeve Boothby O’Neill
William Weir is an infectious disease physician in London who has treated many ME/CFS patients. He has been involved in some of the ongoing cases in England in which severely ill teenage girls and young women, and their families, have been in conflict with their local hospitals about the best approach to treatment. In general,…