Year: 2026
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An Essay on Living with Severe ME
I’ve been totally out of commission for three weeks while recovering from bruised ribs sustained in a fall. I have devoted most of my time trying to find sitting and lying positions that did not cause excruciating pain. That part is over, and I’m slowly getting back to work and catching up on what’s been…
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My Unexpected E-Mail Exchange with Alem Matthees
In recent months, one of the most high-profile people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)—Australian Alem Matthees—has reported significant improvement in his condition. He is still bed-bound, and is still not speaking. This is not, by any means, “recovery.” Nonetheless, the change in Alem’s ability to read, consume information and communicate is remarkable. As Alem’s…