Trial By Error

Category: david tuller

  • Recent News Articles Highlight Post-Exertional Malaise

    A few prominent news articles have recently drawn welcome attention to the links and overlaps between ME/CFS and long Covid. One key overlap is the core ME/CFS symptom generally known as “post-exertional malaise” (PEM). This term is so embedded in conversations in the ME and ME/CFS worlds that it is easy to forget others outside…

  • Norwegian CBT/GET Ideologues Take Aim at Critics Who Reject Their Views

    [*See correction in third paragraph] Three Norwegian researchers recently published an attack on critics of cognitive behavior therapy and graded exercise therapy as treatments for ME. The article, called “Facts and Myths about ME,” was published by the news organization Aftenposten. The authors, from the Scandinavian arm of the CBT/GET ideological brigades, asserted that “the…

  • The 7th Anniversary of My Expose About the Fraudulent–i.e. Misleading, Deceptive–PACE Trial

    This month marks the seventh anniversary of Virology Blog’s publication of my 15,000-word investigation of the egregiously flawed and fraudulent (i.e. misleading, deceptive) piece of crap known as the PACE trial. (Incidentally, it is also the one-year anniversary of the new and much-improved guidelines for ME/CFS from the National Institute for Health and Care Excellence.)…

  • German Draft Report on ME/CFS Raises Alarms for Promoting CBT and GET

    The European ME Coalition (EMEC) has published a statement about and an analysis of a recently released report about ME/CFS from a Germany agency, the Institute for Quality and Efficiency in Health Care (IQWiG). With EMEC’s permission, I have re-posted the statement in full below. The original post can be found here. The in-depth analysis,…

  • My Most Recent Letter to the HRA Related to Ethical Lapses at the University of Bristol

    In 2019, Professor Esther Crawley, Bristol University’s methodologically and ethically challenged grant magnet, was asked to make corrections to the ethics statements in eleven of her papers after a joint report from the Health Research Authority (HRA) and her own institution found deficiencies in her work. (My first post on this matter was four years…

  • So the Dog Ate Professor Crawley’s Corrections AND Her Correspondence As Well

    I’ve been waiting to hear from the UK’s Health Research Authority about why seven papers from Professor Esther Crawley, Bristol University’s methodologically and ethically challenged grant magnet, have not been corrected–as mandated in a joint 2019 report from the HRA and her own academic institution. As many readers are aware, the joint report provided specific…

  • New Study Promotes “Bespoke” Hospital Rehab Program for Kids with ME/CFS

    The International Journal of Environmental Research and Public Health recently published a paper called “Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS.” The investigators retrospectively reviewed the records of 27 children and young people (CYP) who were treated in a ward-based rehabilitation…

  • Did the Dog Eat Professor Crawley’s Seven Missing Corrections?

    UPDATE on October 25th: To ensure a more complete record of my correspondence with the HRA, I have added to the end of this post a subsequent letter from the agency indicating that they had received a response from Bristol and were considering what to do, and my letter in response to that news–an exchange…

  • Cindy Bateman and OMF Seek to Boost Medical Education About ME/CFS and Related Illnesses

    Medical education in the US has not generally included accurate information about ME/CFS. If medical students learned anything at all about the illness, it is most likely the view that it should be regarded as psychosomatic and that exercise and psychotherapy should be prescribed. The same is true for residencies and fellowships, and for continuing…

  • Update on Professor Crawley’s Uncorrected Ethics Statements

    In August, I alerted both the University of Bristol and the UK’s Health Research Authority about a problem. In a joint report published in 2019, Bristol and the HRA requested that the university’s methodologically and ethically challenged pediatrician and grant magnet, Professor Esther Crawley, correct 11 papers on ME/CFS. (The studies generally referred to the…

  • Mt Sinai’s David Putrino on Long Covid, Post-Exertional Malaise, and Lazy Doctors–Text Version!

    David Putrino is a neuroscientist and physical therapist at Mt Sinai Hospital in New York. He runs a research lab and rehabilitation center that became a magnet for people grappling with what became known as long Covid–or what the US National Institutes of Health called post-acute sequelae of SARS-CoV-2 (PASC). A native of Perth, Australia,…

  • Berkeley’s October Crowdfunding Campaign

    As in previous years, October is crowdfunding month at the University of California, Berkeley, and I am once again seeking funds to continue my work on ME, ME/CFS, “medically unexplained symptoms,” and now long Covid. (Link here.) These tax-deductible donations to Berkeley will support my academic position as senior fellow in public health and journalism…