Author: David Tuller
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Professor Chalder Messes Up Again in New Paper on CFS and Employment Outcomes
Same-Day Update: In re-reading the new paper, I noticed that the discussion section also features errors involving the percentages. It includes this sentence: “About 9% of individuals who were not working at baseline had returned to work at follow-up.” And this one: “Further, 6% of those working at baseline were no longer working at follow-up.”…
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Lightning Process Star Complains About NICE; Struthers Nudges Cochrane to Keep Up
Another Anti-Science Campaigner Takes Aim at NICE The anti-science zealots do not give up easily. Now Live Landmark, the Norwegian Lightning Process practitioner, has written an opinion piece blasting the new evidence-based guidelines for ME/CFS from the National Institute for Health and Care Excellence (NICE). I assume she is not just upset that the document…
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An Interview with Adam Lowe, a Member of the NICE Guideline Committee for ME/CFS
Adam Lowe, a patient, was one of five lay people on the committee pulled together by Britain’s National Institute for Health and Care Excellence to work on the new ME/CFS guideline. He and I spoke recently on Zoom about his role in the […]
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New Paper From PACE Authors Repeats Bogus Arguments and Defenses
The October 29th publication of the new guideline for ME/CFS from Britain’s National Institute for Health and Care Excellence (NICE) represented an enormous and humiliating repudiation of the PACE trial and the many related studies of cognitive behavior therapy (CBT) and graded exercise therapy (GET) as treatments for the illness. That means it also represented…
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Some National Health Service Branches Fail to Respond to New NICE Guidelines for ME/CFS
In late October, the UK’s National institute for Health and Care Excellence (NICE) released its new ME/CFS guideline, which specifically recommend against graded exercise therapy (GET) and a specialized form of cognitive behavior therapy (CBT). Last week, I wrote about how King’s College London continues to host a page on “CBT and chronic fatigue syndrome,”…
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Is Something Shifting at the Science Media Centre?
For years, London’s Science Media Centre has fiercely promoted research into graded exercise therapy (GET) and cognitive behavior therapy (CBT) for the illness or cluster of illnesses variously referred to as chronic fatigue syndrome, myalgic encephaloymyelitis, CFS/ME, ME/CFS, and other names. Some of the prominent experts in this field have had close relationships with this…
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Authors Alicia Butcher Ehrhardt and Nasim Marie Jafry Discuss Their Novels
It is hard enough to write when you’re feeling healthy. So I’m in awe of people who manage to write despite suffering from a debilitating chronic illness—especially one that messes around with cognitive functioning. That number includes some ME patients who have written novels. (I don’t write fiction; I have a hard enough time keeping…
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King’s College London Is Still Hyping “Bespoke” CBT for CFS as “Recommended” in UK
A week ago, Britain’s National Institute for Health and Care Excellence published its new, evidence-based guideline for ME/CFS, which recommended against graded exercise therapy and cognitive behavior therapy offered as curative rather than as supportive care. Not surprisingly, this event creates some public relations problems for members of the CBT/GET ideological brigades, who have spent…
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Losers in NICE Guideline Fight Remain Defiant Despite Public Repudiation of Their Claims
*For more about the significance of the new NICE guideline for ME/CFS, the blog ME/CFS Skeptic has this excellent summary. Also, psychologist Brian Hughes covers the deep concerns of leading medical groups that the guideline recommends against the Lightning Process. It is not surprising that esteemed experts whose research has been publicly exposed as a…
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NICE Liberates New ME/CFS Guideline After Two-Month Hijacking Nightmare
After much drama, the National Institute for Health and Care Excellence (NICE) has finally liberated its hijacked ME/CFS clinical guideline. As many know, in August the agency abruptly called off the planned publication of this new document, which was developed over four years. This decision occurred in the wake of fierce objections from members and…
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PACE Authors Now Blame “Misunderstandings” for GET/CBT Criticisms
It is hard to know what to make of the news that a peer-reviewed journal has actually accepted a PACE-reunion paper from the three lead investigators—Professors Michael Sharpe, Trudie Chalder, and Peter White. Even more so for a paper titled–without irony, it seems–“Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis.” This…
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NICE Announces Upcoming Release of ME/CFS Guideline After Prolonged Hostage Drama
Two days following a high-profile meeting with opponents and supporters of its new-but-still-unpublished ME/CFS guideline, the UK’s National Institute for Health and Care Excellence announced on Wednesday that it plans to release the document next week. The decision comes after a powerful cabal of medical practitioners held the process hostage for two months with unwarranted…