Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients. This account is an automatic WordPress-to-Fediverse feed; replies here will not be seen.
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Time’s Health100 List Includes Leaders in Long Covid and ME/CFS
Last week, Time magazine unveiled a list called the TIME100 Health—a selection of “leaders from across industries—scientists, doctors, advocates, educators, and policy-makers, among others—dedicated to creating tangible, credible change for a healthier population.” Time also wrote this: “Together, they are a reminder that many things are going right, and their work is enough to inspire…
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A Conversation with the Co-Founders of The Sick Times
Journalists Betsy Ladyzhets and Miles Griffis are the co-founders of The Sick Times, a non-profit that covers Long Covid and other chronic infection-related illnesses. They launched the site last November and have built up a solid following for their reporting, updates, and weekly newsletter. They recently received a $250,000 grant that will allow them to…
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Interview with Co-Organizator of Next Week’s Unite To Fight Long Covid Conference
Marco Wetzel, a digital sales expert, is one of five German Long Covid patients who banded together earlier this year with an ambitious plan to produce a major online conference called UniteToFight. Although they faced some initial skepticism, they quickly rounded up some high-profile names as speakers for the free event, including Pulitzer-Prize winning journalist…
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Berkeley’s May Crowdfunding Campaign Begins…
Berkeley’s latest crowdfunding campaign for Trial By Error begins today. It is hard for me to believe that I have been working on this project—debunking awful research into what was then called “chronic fatigue syndrome,” and related issues–for ten years. My efforts began in the summer of 2014, when I traveled to the UK to…
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Australian GP Group Recommends “Incremental Physical Activity” for “CFS/ME” Patients
What’s going on with Aussie members of the graded exercise therapy cult? (Oops!—I meant the Royal Australian College of General Practitioners, a trade and professional organization. Sorry!) In 2019, I wrote about the organization’s guidance for “CFS/ME.” This guidance, published in 2015, was part of the group’s Handbook of Non-Drug Interventions (HANDI). This month, HANDI…
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Guardian Columnist George Monbiot Discusses His Scathing Rebuke of the Biopsychosocial Brigades–Text Version
Last week, I spoke with George Monbiot, a British investigative reporter and political activist, who has been a columnist for The Guardian for almost 30 years. He and I have been in occasional communication in recent years over an issue of mutual interest—the scandalous mistreatment of patients suffering from the devastating illness (or cluster of illnesses) known as…
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Guardian Columnist George Monbiot Discusses His Scathing Critique of the “Biopsychosocial” Approach to ME/CFS and Long Covid
Earlier today I spoke with George Monbiot, a British investigative reporter and political activist, who has been a columnist for The Guardian for almost 30 years. He and I have been in occasional communication in recent years over an issue of mutual interest—the scandalous mistreatment of patients suffering from the devastating illness (or cluster of…
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Senator Bernie Sanders’ $10 Billion Long Covid “Moonshot” Proposal
On April 9th, Senator Bernie Sanders, the independent senator from Vermont who votes with the Democrats, unveiled an ambitious $10 billion “moonshot” proposal to fund research into Long Covid. The proposal has raised hopes among patients with the disease or cluster of diseases now being called ME/CFS—as well as concerns that those who came down…
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An Interview with the Authors of the European ME Alliance Survey of 11,000+ Patients
Earlier this month, the European Myalgic Encephalomyelitis Alliance (EMEA) released a 235-page report on a survey of ME/CFS patients in Europe titled “Same disease, different approaches and experiences.” The authors are Arild Angelsen, a board member of the Norwegian ME Association and a professor at the School of Economics and Business at Norwegian University of…
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REGAIN Team Responds to Criticism with Unconvincing Defenses of Methodological Missteps
In recent weeks, I have been urging The BMJ to correct a flawed University of Warwick trial of an online mental and physical health rehab program for people with prolonged symptoms at least three months after hospitalization for Covid-19. The primary outcome was health-related quality of life, assessed with a measure called the PROPr score.…
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A New Study from Exeter on “Brain Training” for Treatment of Post-Covid Cognitive Problems
The University of Exeter is now recruiting for a study of “brain training” as a treatment for prolonged cognitive dysfunction after a bout of Covid-19. I found out about this via a post on X. The post highlighted a message that had been sent to an unidentified patient from their medical providers: “Are you experiencing…
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In England, Conflicts Between Families and Hospitals Threaten the Lives of Young Women with ME
ME patients and advocates in England have been alarmed by a series of ongoing cases in which the families of severely ill young women have struggled to convince hospitals to fit them with feeding tubes before they starve to death. I covered a similar situation last year in a piece about the life and death…