Category: Uncategorized
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My E-Mail Exchange With NICE Chief Executive
On Friday, I had an e-mail exchange with Sir Andrew Dillon, chief executive of the NICE Guidance Executive. The other seven Guidance Executive members are various directors within the NICE hierarchy, including the communications director. This group will make the final decision about whether to accept the provisional decision of a NICE surveillance review team…
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Retired PACE Investigator Peter White and Swiss Re
On November 17, 2015, a few weeks after publication of my 15,000-word investigation of the PACE trial, I posted a blog about a talk Peter White gave to Swiss Re employees on the findings from his bogus study. Professor White, of course, was the lead PACE investigator and also served–and apparently still serves–as “chief medical…
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The Science Media Centre’s Desperate Efforts to Defend PACE
This week, the Journal of Health Psychology published a special issue containing a raft of commentaries on the PACE trial. Most of them slammed the study for its many, many unacceptable flaws. Not surprisingly, Sir Simon Wessely’s lackeys at the Science Media Centre immediately posted three comments from “experts” lauding the trial and criticizing the…
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NICE Rejects My FOI Request
The National Institute for Health and Care Excellence, the U.K. organization that develops clinical guidelines for medical conditions, has rejected my freedom-of-information request for the names of the experts involved in the reassessment of the guidance for the illness it calls CFS/ME. This isn’t surprising, since the agency also recently rejected similar requests from the…
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NICE Declines to Disclose Names of Experts
The Countess of Mar, a well-known advocate for ME/CFS patients in the House of Lords, has received a negative response to her request for the names of the experts involved in the review of the NICE guideline for CFS/ME. The ME Association has not yet received a response related to the same question, nor have…
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University of Bristol Responds, Sort Of
Last week, I e-mailed a letter to Sue Paterson, director of legal services at the University of Bristol, to express my concerns about Professor Esther Crawley’s false claim that I had libeled her in reporting on her research for Virology Blog. On Friday, I received a two-sentence response from Ms. Paterson. She addressed it to…
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My Letter to the University of Bristol
This morning I e-mailed the following letter to Sue Paterson, the University of Bristol’s Director of Legal Services and Deputy University Secretary, to protest Professor Esther Crawley’s accusation that I libeled her in blogging about her work. I cc’d the office of the university’s vice-chancellor, Professor Hugh Brady. ********** Dear Ms. Paterson: I have recently…
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Julie Rehmeyer’s Journey “Through the Shadowlands”
In February, 2011, I wrote a bad article about the PACE trial. At that time, I was reporting on the XMRV situation and had never heard about this piece of crap. As happens at news organizations, my editor at The New York Times sent me the Lancet paper and asked me to write it up…