Category: Norwegian ME Association
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More on Norway’s Problematic Draft Guideline for “Long-Term Fatigue–including ME/CFS”
I posted a piece yesterday on Norway’s draft guideline for “long-term fatigue—including ME/CFS.” But my post was already outdated! The draft guideline was written by a team from the Norwegian Directorate of Health and is open for public comment until May 4th. A working group of 25 individuals from a range of backgrounds was appointed…
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Norway’s Problematic Draft Guideline Combining Long-Term Fatigue and ME/CFS
On February 4th, the Norwegian Directorate of Health published a draft of a “national professional guideline” for diagnosis, management and treatment of “long-term fatigue—including ME/CFS.” A consultation period for the draft lasts for three months. All comments must be received by May 4th. The draft is intended to replace a 2015 document called “National Guide…
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An Interview with the Authors of the European ME Alliance Survey of 11,000+ Patients
Earlier this month, the European Myalgic Encephalomyelitis Alliance (EMEA) released a 235-page report on a survey of ME/CFS patients in Europe titled “Same disease, different approaches and experiences.” The authors are Arild Angelsen, a board member of the Norwegian ME Association and a professor at the School of Economics and Business at Norwegian University of…