Category: ME/CFS
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Advocates Propose Fixes to Dysfunctional US Coding System for ME, CFS and ME/CFS
I have been focused lately on the continuing saga of the hijacked-and-still-unpublished ME/CFS clinical guidelines (HSUME/CFSCG) from Britain’s National Institute for Health and Care Excellence (NICE). The fate of the HSUME/CFSCG will apparently be addressed at an October so-called “roundtable” meeting of NICE and representatives from relevant interest groups. (I’m not sure what makes it…
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An Updated Letter to the NICE Chief Executive About the Unpublished ME/CFS Guideline
I sent the following letter today to Professor Gillian Leng, chief executive of the National Institute for Health and Care Excellence (NICE). It was a follow-up to the letter I sent on September 1st about the agency’s decision to delay publication of it new ME/CFS guidelines. The letter has now been signed by more than…
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More Science-as-Promotion from the GET Campaigners
Professor Trudie Chalder, Professor Peter White and like-minded members of the CBT/GET ideological brigades have appeared desperate in the last year to promote their favored interventions, publishing one shoddy paper after another. This stream of sewage has seemed intended to influence the new ME/CFS clinical guidelines that Britain’s National Institute for Health and Care Excellence…
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Jennie Spotila’s Annual Fact-Check of NIH Spending on ME/CFS Research
There is a lot going on in the ME and ME/CFS world that I don’t get around to. That’s why I’m always grateful that Jennie Spotila always deconstructs the numbers on the annual spending claims from the National Institutes of Health. Last month, on her blog Occupy M.E., Spotila submitted the NIH’s 2020 numbers to…
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While NICE Waffles, US Specialists Publish New Clinical Guidelines for ME/CFS
Two weeks ago, NICE abruptly announced that it was putting the brakes on publication of its new ME/CFS guidelines—a move precipitated by fierce opposition from key members of the GET/CBT ideological brigades in the British medical establishment. Then last week, Mayo Clinic Proceedings, a well-known journal, published a different set of ME/CFS guidelines that—like the…
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A Letter Urging NICE to Publish ME/CFS Guideline Without Delay
This morning, I sent the following letter to Professor Gillian Leng, the chief executive of the National Institute for Health and Care Excellence. Professor Gillian Leng CBEChief ExecutiveNational Institute for Health and Care Excellence Dear Professor Leng, Please find below a letter urging NICE to publish the new ME/CFS guideline, signed by scientists, clinicians, academics…
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NICE Squares Off Against Royal College Bullies Over New ME/CFS Guidelines
For many years, campaigners for psycho-behavioral interventions for ME/CFS have accused patients who objected to the research as being anti-scientific zealots. It was always a ridiculous charge, but developments this week have made it clear, if there was any doubt, that these entitled bullies are the ones immune to the actual evidence. The National Institute…
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The Times Fact-Checks BMJ on NICE Committee; My Letter to BMJ’s Fiona Godlee
It is not often that a major news organization fact-checks BMJ, a leading medical publisher, in real time. But that’s what happened last week when The Times pushed back against biased BMJ reporting about the committee charged by the UK’s National Institute for Health and Care Excellence (NICE) with developing a new clinical guidance for…
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Three CBT/GET Proponents Quit NICE ME/CFS Guidance Panel as Publication Date Nears
The new ME/CFS clinical guidance from the UK’s National Institute for Health and Care Excellence (NICE) is finished—and is to be publicly released on August 18th. In the meantime, this final version has been sent to registered stakeholders—even as three of the 21 members of the committee responsible for the guidance have stepped down without…
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Neurology Journal Fixes False Claim in MUS Paper–But Fails to Publish a Correction Notice (Ironically, I Have Added a Correction to the Post!)
UPDATE: August 4, 2021 Dr Villemarette-Pittman, the managing editor of Journal of the Neurological Sciences, has informed me that she has learned from Elsevier that a corrigendum has in fact been written and will be published in the near future. She also informed me that she plays no role in deciding on or setting policy…
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Tack and I Write to Psych Medicine; Struthers Writes to Medical Research Council
A recent study of cognitive behavior therapy (CBT) for patients with “persistent physical symptoms” (PPS), a category alsocalled “medically unexplained symptoms,” reported null results for its primary outcome. These null results were not mentioned in the conclusion of the abstract, which instead focused on minimal reported benefits for a minority of secondary outcomes. This is…
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CBT Model of Medically Unexplained Symptoms, Explained; CBT Trial for Q-Fever Fatigue
As I have recently written, four major clinical trials of CBT for so-called MUS have documented the opposite of what the investigators hoped to prove. In fact, the evidence from this research suggests that CBT is not an effective treatment for these conditions. That hasn’t stopped these investigators from claiming otherwise, of course. As my…