Year: 2022
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More on the REGAIN Trial for Long Covid Patients
*April is crowdfunding month at UC Berkeley. If you like my work, consider making a tax-deductible donation to Berkeley’s School of Public Health to support the Trial By Error project: https://crowdfund.berkeley.edu/project/31347 I wrote recently about the problematic REGAIN study from the University of Warwick, which is testing an exercise-and-psychological-rehab program as a treatment for long…
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Can Someone Please Slap a Warning Label on this Exercise-and-Rehab Long Covid Study?
I’ve been writing for a while about the rush to treat long Covid patients with the outdated and debunked approach long applied to ME/CFS. A major effort to demonstrate that an exercise program can lead to “recovery” from long Covid, sponsored by the University of Warwick and funded with £1.200,000 from the UK’s National Institute…
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British GP Journal Retracts “Opinion” About Lightning Process Written By LP Practitioner
This week, a journal under the umbrella of the British Journal of General Practice published–and a day later unpublished–a laudatory piece about the Lightning Process from a Lightning Process practitioner. The author, Anna Chellamuthu, is also a GP at Royal Cornwall Hospital. She wrote that the controversial program combining neurolinguistic program, osteopathy and life-coaching cured…
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The Usual Suspects Promote a Psychosocial “Research Agenda” for Long Covid
In what could be described as a form of epistemic land grab, core members of the graded exercise therapy/cognitive behavior therapy (GET/CBT) ideological brigades have proposed a “research agenda” for long Covid that reflects the premises of their crumbling treatment paradigm for ME/CFS. This is not surprising. It has been clear from the early reports…
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My Letter Responding to Norway Health Leader’s Efforts to Denigrate My “Activist” Work
Updated on March 2, 2022: Yesterday I received a thoughtful note from Professor Miek Jong in response to my recent letter to her (see below) regarding the effort on the part of a leading Norwegian doctor to denigrate my work by describing me as an “activist.” I have sent Professor Jong the following answer: Dear…
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The Lancet Publishes Whine de Coeur from Impassioned GET/CBT Defenders
The Lancet has just published an anguished whine de coeur from supporters of the graded exercise therapy/cognitive behavior therapy/ [GET/CBT] approach to ME/CFS. (Or CFS/ME, as these authors insist on calling the illness in what those familiar with the debate will recognize as a childish fit of pique.) These impassioned members of the GET/CBT ideological…
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My Exchange of Letters on Amygdala Retraining; That Undead Lightning Process Study
Earlier this week, I wrote to Helena Liira of the Helsinki University Central Hospital about a new trial of “amygdala and insula retraining” for so-called “functional disorders”—fibromyalgia and irritable bowel syndrome along with ME/CFS and long Covid. (I critiqued the trial here.) In particular, I wondered how the investigators justified use of the phrase “amygdala…
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More on the Dutch CBT Long Covid Trial; Finnish Study of “Amygdala Retraining” Program
Update: I have sent the following letter to the responsible person listed on the clinical trial registration for the Finnish study of “amygdala and insula retraining”: Dear Dr Lira– I am a public health researcher and journalist with the Center for Global Public Health, part of UC Berkeley’s School of Public Health. I frequently comment on research in…
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CBT for CFS Should Target “Problematic Worry,” Says New Study from Professor Chalder
Apparently, after 30+ years of promoting cognitive behavior therapy for chronic fatigue syndrome (so-called), Professor Trudie Chalder has discovered something new: Patients worry a lot! And those with worse symptoms tend to have higher worry levels! She believes CBT for CFS can be tweaked to make a difference. She presents this information in a new…
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Does “Long Covid” Need Rebranding As “Ongoing Covid-19 Recovery”?
Now here’s a paper called “The Effects of Messaging on Expectations and Understanding of Long COVID: An Online Randomised Trial,” from researchers at the UK’s Health Security Agency. Two of the nine authors, including the senior author who conceived the study, are also affiliated with a National Institute for Health Research unit that partners with…
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Q-and-A with Natalie Boulton, Director of “Dialogues for a Neglected Illness”
More than ten years ago, Natalie Boulton and her son, Josh, made a film called “Voices from the Shadows,” about the plight of ME patients. Natalie, from Bristol, England, was intimately familiar with the issue because of the long-time illness of her daughter, Anna. The film, a harrowing depiction of the ravages of ME, helped…
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French Dogs on the Trail; Impact of Long Covid on the US Job Market
Can Dogs Smell Compounds Associated with Host Response in Long Covid? It can be unwise to pay attention to research published on a pre-print server before it has been through a peer-review process. Although passing through peer-review is itself no guarantee of quality, the process represents at least one layer of scrutiny. Nonetheless, some pre-prints…