Tag: Jonathan Edwards
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Interview with Jonathan Edwards about “Therapy Guide” from British Association of Clinicians in ME/CFS
The British Association of Clinicians in ME/CFS, known as BACME, defines itself as “a multidisciplinary organisation providing information, resources, education and networking opportunities to UK professionals to deliver high quality care” to people with the illness. Its members include psychotherapists, physiotherapists, occupational therapists, physicians, and others involved in delivering services to patients. Formerly known as the…
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Hungarian Experts Make Goulash out of NICE Guidelines
In April, the Hungarian journal Orvosi Hetilap [Medical Weekly] published an article called “Interdisciplinary consensus statement about the diagnosis and treatment of chronic fatigue syndrome/myalgic encephalomyelopathy.” The goal, according to the abstract, “is to provide appropriate information for professionals working in the Hungarian health care system: physicians, psychologists, physiotherapists, and dietitians.” [The journal site itself…
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Professor Edwards’ Letter to BMJ on the Cochrane Mess
The Cochrane mess, which I wrote about the other day, is threatening to take on a life of its own. Perhaps Cochrane thinks the fuss over the big Christmas “fuck you” it delivered to members of the ME/CFS community will blow over quickly. That could happen, I suppose, but I suspect this issue will continue…
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More Debate About Treatment of Severe ME/CFS
Last month, Jonathan Edwards, an emeritus professor of medicine at University College London and an advocate for patients with ME/CFS, published a statement on a pre-print server about managing the nutritional needs of patients with severe disease. (I wrote about it here.) A few days ago, a group of parents and carers released an open…
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Advocates Issue Hopeful Comments After NICE Pow-Wow on ME/CFS Guideline
Two months ago, the UK’s National Institute for Health and Care Excellence (NICE) abruptly delayed publication of its new ME/CFS clinical guideline under fierce objections from the GET/CBT ideological brigades and their minions. Today (Monday, October 18th), the agency hosted a meeting to allow these powerful dissenters from some of the British medical associations grandly…