Tag: anil van der zee
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In a Compelling Documentary, Five Doctors Discuss Being Sick
I first connected with Anil van der Zee, a severe ME patient in Amsterdam, when he reached out almost ten years ago to invite me to talk at an event he was organizing in Amsterdam. In his former life, Anil was a ballet dancer. Now, from his bed, he creates compelling and often visually stunning…
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Some Things I’ve Read Recently…in STAT, The Sick Times, Van Der Zee’s Blog
Embedding ME/CFS in NIH’s RECOVER initiative Ian Lipkin is a well-known professor of epidemiology at Columbia University and director of the Center for Solutions for ME/CFS, funded by the U.S. National Institutes of Health (NIH). In a recent opinion piece for STAT, he and ME/CFS patient advocate Elizabeth Ansell, the founder and executive director of…
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Anil van der Zee’s New Video on Living with Severe ME
Anil van der Zee and I first connected in 2016, when he invited me to Amsterdam to give a talk at a screening of Ryan Prior’s documentary about his own illness, Forgotten Plague. Anil was already home-bound from ME; he organized that event from his bed. We didn’t meet during that visit–he wasn’t able to…
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A Day in the Life of Anil van der Zee
It is May 12th–ME International Awareness Day. (Or ME/CFS International Awareness Day if you’re the US Centers for Disease Control and Prevention. In Washington, DC, #MEAction and Body Politic have organized a protest and press conference “to demand bold, urgent governmental action for the millions of people living with myalgic encephalomyelitis (ME), Long COVID, and…
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Some Stuff to Read and Watch From Rivka, Natalie & Anil
Massachussetts writer Rivka Solomon has had moderate* [I initially wrote “severe,” and Rivka corrected me.] ME for many years but still manages to get out there (metaphorically) and organize lots of stuff. A couple of years ago, she arranged a talk for me to give about the PACE trial debacle at a Boston-area hospital. She’s…