Category: Maeve
-
Interview with Karen Hargrave, Co-Founder of #ThereForME
Karen Hargrave is co-founder of an advocacy campaign called #ThereForME, which was launched this past summer to draw public awareness to the UK’s lack of care and treatment and to call “for an NHS [National Health Service] that’s there for people with ME and Long Covid.” The campaign has drawn significant media attention, especially in…
-
Coroner in Boothby O’Neill Inquest Issues Report to Prevent Future Deaths
For two weeks in late July and early August, His Majesty’s Assistant Coroner Deborah Archer heard testimony regarding the death of Maeve Boothby O’Neill, a 27-year-old woman who died of malnutrition after three hospitalizations at the Royal Deven and Exeter Hospital (RDE) failed to address her severe case of ME. While Archer’s report on the…
-
UK Health Care Professionals Appeal to Health Secretary for Quick Action on Poor ME Care
Tuesday, September 17th, was World Patient Safety Day. (I didn’t know that either.) In the UK, more than 200 physicians, nurses and other health care providers and professionals marked the occasion by issuing an appeal—in the form of a letter to Wes Streeting, Secretary of State for Health and Social Care since–about the dire state…
-
In England, Conflicts Between Families and Hospitals Threaten the Lives of Young Women with ME
ME patients and advocates in England have been alarmed by a series of ongoing cases in which the families of severely ill young women have struggled to convince hospitals to fit them with feeding tubes before they starve to death. I covered a similar situation last year in a piece about the life and death…
-
My Article About the Life–and Preventable Death–of Maeve Boothby O’Neill
Last week, Codastory.com published an article I wrote about Maeve Boothby O’Neill, a 27-year-old in Exeter, England, who died in October, 2021, from complications of ME. The specific cause appears to have been malnutrition. Despite being alerted to the seriousness of Maeve’s condition, the local hospital resisted appeals to insert a feeding tube during her…