Category: Beth mazur

  • Three Blogs–Julie Rehmeyer on Beth Mazur’s Death; Whitney Dafoe on Real Life; Elke Hausmann on Exercise and “The Salt Path”

    Two years ago, Beth Mazur, who co-founded #MEAction and spent years advocating for better care and more research, committed suicide during a stay with her close friend and fellow person with ME, Julie Rehmeyer. It is hard to imagine what feels unimaginable—the shock and pain of finding the body of someone you love in their…

  • Yet Another ME-Related Death

    It has been a season of loss. Two weeks ago, I posted an obituary for the much-loved ME patient advocate Beth Mazur, who co-founded #MEAction and suffered with the disease for years. Last October, I posted tributes to Celine Corsius from her parents and brother; Celine died by euthanasia under Dutch law, also after many…

  • Obituary for Beth Mazur

    By Brian Vastag Beth Anne Mazur, a fierce but unassuming advocate for people with a devastating — and devastatingly neglected — chronic illness, died on Dec. 21, 2023, in the mountains above Santa Fe, N.M. She was 47 years old.  Beth leaves behind a wide circle of dear friends; many partners in patient advocacy; a…